2:20 pm
85/59 82 bpm (standing)
The kids on the Jersey Shore have Gym, Tanning, Laundry; Elizabeth Gilbert had Eat, Pray, Love; I have Eat, Work, Exercise.
Last year, after reading Eat, Pray, Love, I was inspired to go to Italy. And I did eat my way through Rome and Florence. I also walked everywhere, climbed a lot of stairs and waited on a lot of lines. That was before dsysauto. Now, I get exhausted just thinking about that trip and wonder if I could do it today. I don't know. I do know I'm not planning on traveling this year because the thought of even the airport experience - waiting on lines, drinking a lot of water and not being able to use the airplane bathroom until after takeoff, having to sit for 5-9 hours on the plane, etc. - just seems like too much hardship.
I'll travel next year probably. The irony is, I barely leave my bed and apartment on weekends because I'm recovering from the workweek, but I'll gladly traipse all over Europe for a 8 days! I'm thinking of going to Spain. I'd like to go to a soccer match in Barcelona to see Barcelona FC play at the Nou, and I especially want to see Real Madrid play in Madrid. My favorite soccer player, Cristiano Ronaldo (that's his picture on my blog) plays for them now so a trip to the Bernabeu stadium is in order.
A couple of years ago I flew to Manchester England for an overnight stay just to see my team Manchester United play (Ronaldo used to play for them). Obviously I love soccer and since I now spend a lot of time laying in bed watching tv, I'm always happy when Man United and Real Madrid games are televised. Like today, Madrid's set to play Villarreal in about 5 minutes on ESPN. But there's nothing like going to the home country to see a team play live and I'm not going to let a few dysoauto monkeys stop me!
So back to eating. I eat really well. No processed food-if it's in a package, I don't buy it. I love vegetables and fruits. I don't eat red meat, just because I don't like it (although I have a good hamburger once in a blue moon), and mostly eat fish and chicken. I love carbohydrates but stick to fresh, non-fried ones like good bran muffins, fresh bakery bread, etc. I drink water (tons, obviously) and have one diet Pepsi or Coke a day with lunch. I drink hot tea and herbal teas.
However...I LOVE cake, and the more frosting the better. And I love Harvest Cheese Sun Chips (once in a while). The problem this dysauto is causing with my eating is with the exhaustion and fatigue. The last 3 weeks or so, the fatigue has been overwhelming. It's so bad that at any moment, I could close my eyes, no matter where I am, and fall asleep. And no amount of salt and water is helping.
And, unfortunately, when I'm tired, I crave carbohydrates. Bad ones. And this past week, I was really bad. It was like the perfect storm: fatigue, having my period (sweets temporarily alleviate the migraine pain), and the first year anniversary of my dad's death (emotional eating anyone?).
UGH.
So I put last week behind me and realized I needed to get a grip. I thought this fatigue stuff was going to be a temporary setback, but apparently it's going to roost for a while. So I have to stop fighting it with butter cream frosting. It doesn't work anyway, and if anything it just creates ups and downs in my blood sugar levels which makes the situation worse. So, enough! No more treating my body like a garbage pit, it's going through enough.
Work. My plan to minimize the Crazy Train co-worker at work is well, working! She no longer occupies a large chunk of my brain and I no longer care about her. The first few times that
I had to deal with her without engaging her weren't easy, but now it's coming naturally. Again, the less stress I encounter at work, the better. I find that if I take work a day at a time, I can deal with it. The thought of a 5 day week of schlepping to NJ and home, and all the up and down movement from my desk is too overwhelming to think about at once.
Exercise. I wanted to add weights back into my workout but haven't had the heart to yet. I'm still amazed that after a day of work I'm able to do an hour to an hour and a half on the Precor. I am very lucky that my gym is on the block that I live on. If it weren't then I don't know that I'd make it. I have to play such mind games to get motivated: your jeans will be looser!, hey, you can read that book uninterrupted!, you'll sleep better, your headache will go away for a couple of hours, this is good for your dysautonomia!
And it's all true. Because it's when I don't work out that I feel like crap. Yes, my legs will feel like lead tree trunks the next day when I'm walking up the stairs from the train tracks. But so what? They're gonna feel like that anyway, and it's not going to kill me. Now more than ever, I need to keep going to the gym. Even though I hate every. last. second. of. it.
P.S. While I was writing this, Ronaldo scored! Ole!
Sunday, February 21, 2010
Monday, February 15, 2010
Getting Hit by the Crazy Train
9:30 pm
86/65 85 bpm (standing)
Fool me once, shame on you; fool me twice, shame on me. Fool me a third time - GET HIT BY THE CRAZY TRAIN!
I've gotten to a place where I've minimalized stress in my life as much as I can control. I've had to, because of intractable (constant) migraines. Stress doesn't cause migraines, but it makes them hurt a lot more. So, when the dysauto and the monkeys came, I was in a pretty good place.
I have a great family and friends who are nothing but loving and supportive. I love my job, and even when that gets tense, it's still fun and more manageable than any position I've ever had before. And my co-workers are the best (more on the one exception later).
I go to the gym 4 times a week which goes a long way to keep the stress level down. Even if I'm a dizzy, tired hot mess, I'll still get on the recumbent bike and pedal for an hour while watching tv or reading a book on my Kindle.
I always give myself plenty of time to get ready for work or anywhere else I have to go. And now that I have to drink a ton of water (and then pee numerous times) before I can get out the door, I wake up even earlier. Rushing is gone from my vocabulary now. You want to see a bumbling idiot, try to hurry me. Between the adrenaline rush and the brain fog that occurs, I just melt down.
I plan ahead as much as possible: make my lunch the night before, figure out what I'm going to wear the next day, and don't let things build up and become unmanageable.
Minimizing stress, when you have dysautonomia, is critical. Because the "fight or flight" chemicals shoot through my body every time I stand up, or exert myself, making me that much more exhausted. Because my low blood pressure makes me feel tired all the time. Because adding stress to the mix adds the final knock-out punch, I must avoid stress.
But you know there is always that one person at work who is going to hit you like a crazy train. And she's hit me two weeks in a row now. And I am NOT going to let it happen again! For the record, this person has problems with everyone and for the life of me, I don't know why she is still there. She is crappy at her job and she has no people skills. She was a bad hire by a previous employee. I have tried working with her numerous times but now I give up. Now it's about self-preservation.
It takes a lot for me to shut a person out. And I've given this person 2 years of my time, patience and forgiveness. But after these past two incidences, I realize that she's a stress trigger and I need to minimize her impact on my existence at work. Unfortunately, I have to deal with her, so this is going to be tricky.
This past Friday, a normal, friendly, work-related discussion escalated into her shouting at me within 2 minutes. I didn't even realize what was happening before it ended up with her, my boss, and myself talking it out (her, shouting it out) behind closed doors.
I'm an adult. I don't need my boss to act as mediator because some crazy train went off the rails. It was embarrassing and humiliating. But the worst part, and the part I'm really concerned with, is what it did to me physically.
Even after taking an Ativan, for the rest of the day, I felt like I'd stuck my fingers in an electrical socket. I felt constant waves of adrenaline pulsing through my body. And nothing could stop it. Even hours after the incident, when I was no longer thinking about it, my body was still reacting. It was a terrible, ragged out, electrical, exhausting, speedy feeling that left me exhausted for the next two days.
This is a nasty monkey. It's like driving a motorcycle and starting out in low gear, then shifting to first, second, third, forth and getting stuck there and being unable to downshift. My body couldn't unring the bell. The autonomic nervous system rules the "fight or flight" response and once that kicks in for me, it doesn't listen to me when I tell it the threat has passed.
So I must watch out for this crazy train. My first line of defense will be avoidance. And when I have to deal with her, my second line of defense with be professionalism. She will get Professional Barbie only. No chit chat, no how was your weekend. And my third line of defense will be 'alert and ready to run'. If I see the crazy train headlights flashing, I will start to walk away. If no one else will deal with her there is no reason that I have to.
Again, it's not my nature to be unfriendly to people, but my health comes first. Writing this has been stressful because I don't even like to think about it. But I have to have a game plan when I go in tomorrow. And I think giving up on her, no longer complaining about her, or trying to help her, will unburden me. She's no longer my responsibility. I'll avoid her and when I can't, it'll be just the facts, ma'am. And if she comes at me, I'll walk away.
Hopefully, this will work and the crazy train will move on to the next station.
86/65 85 bpm (standing)
Fool me once, shame on you; fool me twice, shame on me. Fool me a third time - GET HIT BY THE CRAZY TRAIN!
I've gotten to a place where I've minimalized stress in my life as much as I can control. I've had to, because of intractable (constant) migraines. Stress doesn't cause migraines, but it makes them hurt a lot more. So, when the dysauto and the monkeys came, I was in a pretty good place.
I have a great family and friends who are nothing but loving and supportive. I love my job, and even when that gets tense, it's still fun and more manageable than any position I've ever had before. And my co-workers are the best (more on the one exception later).
I go to the gym 4 times a week which goes a long way to keep the stress level down. Even if I'm a dizzy, tired hot mess, I'll still get on the recumbent bike and pedal for an hour while watching tv or reading a book on my Kindle.
I always give myself plenty of time to get ready for work or anywhere else I have to go. And now that I have to drink a ton of water (and then pee numerous times) before I can get out the door, I wake up even earlier. Rushing is gone from my vocabulary now. You want to see a bumbling idiot, try to hurry me. Between the adrenaline rush and the brain fog that occurs, I just melt down.
I plan ahead as much as possible: make my lunch the night before, figure out what I'm going to wear the next day, and don't let things build up and become unmanageable.
Minimizing stress, when you have dysautonomia, is critical. Because the "fight or flight" chemicals shoot through my body every time I stand up, or exert myself, making me that much more exhausted. Because my low blood pressure makes me feel tired all the time. Because adding stress to the mix adds the final knock-out punch, I must avoid stress.
But you know there is always that one person at work who is going to hit you like a crazy train. And she's hit me two weeks in a row now. And I am NOT going to let it happen again! For the record, this person has problems with everyone and for the life of me, I don't know why she is still there. She is crappy at her job and she has no people skills. She was a bad hire by a previous employee. I have tried working with her numerous times but now I give up. Now it's about self-preservation.
It takes a lot for me to shut a person out. And I've given this person 2 years of my time, patience and forgiveness. But after these past two incidences, I realize that she's a stress trigger and I need to minimize her impact on my existence at work. Unfortunately, I have to deal with her, so this is going to be tricky.
This past Friday, a normal, friendly, work-related discussion escalated into her shouting at me within 2 minutes. I didn't even realize what was happening before it ended up with her, my boss, and myself talking it out (her, shouting it out) behind closed doors.
I'm an adult. I don't need my boss to act as mediator because some crazy train went off the rails. It was embarrassing and humiliating. But the worst part, and the part I'm really concerned with, is what it did to me physically.
Even after taking an Ativan, for the rest of the day, I felt like I'd stuck my fingers in an electrical socket. I felt constant waves of adrenaline pulsing through my body. And nothing could stop it. Even hours after the incident, when I was no longer thinking about it, my body was still reacting. It was a terrible, ragged out, electrical, exhausting, speedy feeling that left me exhausted for the next two days.
This is a nasty monkey. It's like driving a motorcycle and starting out in low gear, then shifting to first, second, third, forth and getting stuck there and being unable to downshift. My body couldn't unring the bell. The autonomic nervous system rules the "fight or flight" response and once that kicks in for me, it doesn't listen to me when I tell it the threat has passed.
So I must watch out for this crazy train. My first line of defense will be avoidance. And when I have to deal with her, my second line of defense with be professionalism. She will get Professional Barbie only. No chit chat, no how was your weekend. And my third line of defense will be 'alert and ready to run'. If I see the crazy train headlights flashing, I will start to walk away. If no one else will deal with her there is no reason that I have to.
Again, it's not my nature to be unfriendly to people, but my health comes first. Writing this has been stressful because I don't even like to think about it. But I have to have a game plan when I go in tomorrow. And I think giving up on her, no longer complaining about her, or trying to help her, will unburden me. She's no longer my responsibility. I'll avoid her and when I can't, it'll be just the facts, ma'am. And if she comes at me, I'll walk away.
Hopefully, this will work and the crazy train will move on to the next station.
Sunday, February 7, 2010
Sleepy and Passionflower
6:00 pm
74/52 97 bpm (standing) 104/60 57 bpm (laying down)
I haven't taken my readings lying down in a while so I did today. And now I know why I prefer laying on my ass all day. Look how nice and calm my pulse is - 57 - like a vacation! And a normal (for me anyway) blood pressure. Today and yesterday have been a joke - I've been rushing from place to place with my head bowed and barely made it to Duane Reade to pick up a prescription. I admit I'm not as diligent with my salt and water intake on the weekends so it's my own fault. But I need a break sometimes.
So this past week I was Sleepy. Overwhelmingly Sleepy. When I woke up in the morning, I felt like it was midnight and it was time for bed. By 6pm I was falling asleep. Each week it seems like one monkey takes over, or dominates and last week it was fatigue. Oh, and there was - is - that stabbing, feel-like-I'm-getting-a-tattoo on my upper thigh feeling. It randomly strikes and I have to rub it out, literally.
Fatigue Week tacked onto two previous weeks of intense monthly migraine pain. I've now had three days of very light migraine pain, but the monthly pain starts all over again in three-four days. Life sucks.
Tomorrow I see my neurologist for my pain meds refill and meds tweaking. A couple of months ago we tried to up the labetalol in order to help my migraines, but that backfired. I couldn't get out of bed, I was so dizzy. I did go down 50mg on the topomax, and that's worked out nicely. Not sure how, but it seems there might be less side-effects, which was our goal.
I just wish there was something that could treat the symptoms of the orthostatic intolerance and POTS. This fatigue is a killer. I drink a little more tea, which helps, but then that's not good for the migraines because I don't want that withdrawal headache in the morning. It's always a tough balance between the meds and the migraines and the dysauto.
Anyway, this is clearly a venting post. One good thing though. Since this has happened, my sleep has suffered. Usually I wake up in the middle of the night several times because I have to pee. You can't just stop drinking water a few hours before bedtime, because you won't be able to get out of bed. Or, I get the sweats and I wake up because that's uncomfortable. Or, it's restless leg syndrome.
On the Dr. Oz show, he featured liquid passionflower as something that can help anxiety and insomnia. The funny thing was, right after his show, you couldn't find it anywhere in Manhattan, everyone had bought it out! All the panicked and stressed out New Yorkers...well, I tried it, and every time I take it, I sleep through the night, and I'm not hung over the next morning. So I definitely recommend it. So, that's a good thing.
Looking forward to the 3-day weekend coming up. Just have to get through this week. Hopefully with both eyes wide open.
74/52 97 bpm (standing) 104/60 57 bpm (laying down)
I haven't taken my readings lying down in a while so I did today. And now I know why I prefer laying on my ass all day. Look how nice and calm my pulse is - 57 - like a vacation! And a normal (for me anyway) blood pressure. Today and yesterday have been a joke - I've been rushing from place to place with my head bowed and barely made it to Duane Reade to pick up a prescription. I admit I'm not as diligent with my salt and water intake on the weekends so it's my own fault. But I need a break sometimes.
So this past week I was Sleepy. Overwhelmingly Sleepy. When I woke up in the morning, I felt like it was midnight and it was time for bed. By 6pm I was falling asleep. Each week it seems like one monkey takes over, or dominates and last week it was fatigue. Oh, and there was - is - that stabbing, feel-like-I'm-getting-a-tattoo on my upper thigh feeling. It randomly strikes and I have to rub it out, literally.
Fatigue Week tacked onto two previous weeks of intense monthly migraine pain. I've now had three days of very light migraine pain, but the monthly pain starts all over again in three-four days. Life sucks.
Tomorrow I see my neurologist for my pain meds refill and meds tweaking. A couple of months ago we tried to up the labetalol in order to help my migraines, but that backfired. I couldn't get out of bed, I was so dizzy. I did go down 50mg on the topomax, and that's worked out nicely. Not sure how, but it seems there might be less side-effects, which was our goal.
I just wish there was something that could treat the symptoms of the orthostatic intolerance and POTS. This fatigue is a killer. I drink a little more tea, which helps, but then that's not good for the migraines because I don't want that withdrawal headache in the morning. It's always a tough balance between the meds and the migraines and the dysauto.
Anyway, this is clearly a venting post. One good thing though. Since this has happened, my sleep has suffered. Usually I wake up in the middle of the night several times because I have to pee. You can't just stop drinking water a few hours before bedtime, because you won't be able to get out of bed. Or, I get the sweats and I wake up because that's uncomfortable. Or, it's restless leg syndrome.
On the Dr. Oz show, he featured liquid passionflower as something that can help anxiety and insomnia. The funny thing was, right after his show, you couldn't find it anywhere in Manhattan, everyone had bought it out! All the panicked and stressed out New Yorkers...well, I tried it, and every time I take it, I sleep through the night, and I'm not hung over the next morning. So I definitely recommend it. So, that's a good thing.
Looking forward to the 3-day weekend coming up. Just have to get through this week. Hopefully with both eyes wide open.
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